Scientific Advisory Board
“The PCDH19 gene appears to be one of the most important epilepsy genes since the discovery of SCN1A and its link to Dravet Syndrome, and with further research we hope to gain better understanding of which treatments can maximize seizure control and developmental outcome.”
“I am honored to be part of the advisory board of the PCDH19 Alliance. It is heartening to see a group so dedicated to helping their children by pushing for a cure, and I share the goal of accelerating research efforts to cure this disorder and related epilepsies.”
Thinking about getting involved? From fundraising to volunteering your skills, there are so ways you can make a difference and contribute towards finding a cure.