OUR TEAM

Board of Directors

JULIE WALTERS
JULIE WALTERSPRESIDENT & CO-FOUNDER
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KARIN WELLS-KILPATRICK
KARIN WELLS-KILPATRICKVICE-PRESIDENT
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HEATHER FRYMAN
HEATHER FRYMANTREASURER
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LESLIE HENKEL
LESLIE HENKELSECRETARY
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SUSAN LOFTUS TAYLOR
SUSAN LOFTUS TAYLORBOARD MEMBER
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Scientific Advisory Board

“The PCDH19 gene appears to be one of the most important epilepsy genes since the discovery of SCN1A and its link to Dravet Syndrome, and with further research we hope to gain better understanding of which treatments can maximize seizure control and developmental outcome.”
Dr.Joseph E. Sullivan
“I am honored to be part of the advisory board of the PCDH19 Alliance. It is heartening to see a group so dedicated to helping their children by pushing for a cure, and I share the goal of accelerating research efforts to cure this disorder and related epilepsies.”
Dr. Jack Parent
DR. JOSEPH E. SULLIVAN
DR. JOSEPH E. SULLIVANPEDIATRIC NEUROLOGIST AT THE UCSF BENIOFF CHILDREN'S HOSPITAL
PROFESSOR JOZEF GECZ, PHD
PROFESSOR JOZEF GECZ, PHD NH&MRC SENIOR PRINCIPAL RESEARCH FELLOW AND PROFESSOR OF HUMAN GENETICS AT THE DEPARTMENT OF PAEDIATRICS, UNIVERSITY OF ADELAIDE
DR. RICARDO DOLMETSCH
DR. RICARDO DOLMETSCHGLOBAL HEAD OF NEUROSCIENCE AT NOVARTIS.
DR. JACK PARENT
DR. JACK PARENTNEUROLOGIST AT THE UNIVERSITY OF MICHIGAN
PROFESSOR INGRID SCHEFFER
PROFESSOR INGRID SCHEFFERPEDIATRIC NEUROLOGIST AT THE UNIVERSITY OF MELBOURNE

Thinking about getting involved? From fundraising to volunteering your skills, there are so ways you can make a difference and contribute towards finding a cure.

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