We believe that research is our greatest hope, and we also believe that supporting children and families suffering today is our duty. Look over the collection of resources below, and let us know if you have any questions:
NICHCY compiles disability-related resources in each state, and creates State Resource Sheets. This handy resource sheet will help you locate organizations and agencies within your state that address disability-related issues.
Looking for information on research? PubMed has it all. Click on the button below to go to a list of almost every published scientific articles on PCDH19. When you get to the list, it is arranged by date published, with the newest date first, so be sure to scroll through the multiple pages, to get to older articles.