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Newsletter
My Perspective: Growing Up With PCDH19 Epilepsy
Many people think that having a seizure disorder like PCDH19 merely means that you occasionally have seizures. However, the reality is...
Featured Posts
Standing by our Sister: The Sibling Impact of PCDH19
My First 18 Months as a PCDH19 Dad
Through Claire's Eyes: A Woman's Thoughts on Living with Autism and PCDH19 Epilepsy
Because of Elliot: An Adult Sibling's Reflection on Growing up with a Brother Who Has a Rare Disease
My Perspective: Growing Up With PCDH19 Epilepsy
Developmental Disabilities and Menstruation
Letter of Medical Necessity: What is it? Why do I need it? How do I write it?
Why I Fundraise For The PCDH19 Alliance
Transitioning to Adulthood With PCDH19 Epilepsy
A Father's Day Blessing
Recent Posts
Standing by our Sister: The Sibling Impact of PCDH19
My First 18 Months as a PCDH19 Dad
Through Claire's Eyes: A Woman's Thoughts on Living with Autism and PCDH19 Epilepsy
Because of Elliot: An Adult Sibling's Reflection on Growing up with a Brother Who Has a Rare Disease
My Perspective: Growing Up With PCDH19 Epilepsy
Developmental Disabilities and Menstruation
Letter of Medical Necessity: What is it? Why do I need it? How do I write it?
Why I Fundraise For The PCDH19 Alliance
Transitioning to Adulthood With PCDH19 Epilepsy
A Father's Day Blessing
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