ALLIANCE
EVENTS
Events Calendar
Virtual Connections
Ages 11-20
Date and time to be determined
The Alliance hosts monthly Zoom meetings where you can chat and share with other families. The meetings are grouped by age.
Virtual Connections
Ages 6-10
Date and time to be determined
The Alliance hosts monthly Zoom meetings where you can chat and share with other families. The meetings are grouped by age.
Virtual Connections
Ages 0-5
Date and time to be determined
The Alliance hosts monthly Zoom meetings where you can chat and share with other families. The meetings are grouped by age.
PCDH19 Epilepsy Awareness Day
November 9th, 2020
Reaching out to local media and asking them to share your story is important in raising awareness of PCDH19 Epilepsy, PCDH19 Awareness Day and Epilepsy in general. The PCDH19 Alliance has prepared a press kit with resources such as a sample letter to the editor, the PCDH19 Alliance Logo, PCDH19 Epilepsy facts, and a news release. Both media professionals and PCDH19 advocates are welcome to utilize this information.
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In particular, sharing your story gives others an inside glimpse into the life of families living with a rare epilepsy and powerfully communicates the urgent need for research toward a cure. Please feel free to use these resources and share them with others.