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OUR STORIES

Everyone Affected by PCDH19 Epilepsy Has a Different Story

Some children’s seizures cluster more than once a week, others cluster far less frequently. Some have longer seizures, some shorter. Many start having seizures before they are a year or two old. Some gain seizure control with medication or the onset of puberty, while others do not. Some children are also diagnosed with Autism Spectrum Disorder, and/or can exhibit behavioral and psychological challenges, while others are mentally and cognitively typical.

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What they all seem to have in common is their determination and strength. Please take some time to get to know them through the words of their loved ones.

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The PCDH19 Alliance is a registered non-profit by the Internal Revenue Service under Section 501 (c)(3). All the funds we raise go directly to funding research, supporting families, raising awareness, and finding a cure.

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936-B Seventh St. #162

Novato, CA 94945

Julie@pcdh19info.org

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EIN:45-4020102
Copyright 2024 PCDH19 Alliance​
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