Find help.
Find hope.
Find a cure.
We are improving the lives of those living with PCDH19 Epilepsy through research and support.
Newly diagnosed? Start here.
Our Mission
The PCDH19 Alliance raises and directs funds to scientific research to find better, more effective treatments and, ultimately, a cure.
We’re also here to provide information and support to affected families, assist research efforts, and ensure that no family suffers without a diagnosis and the best medical treatment.
How We Help
What We Do
Fund the Most Promising Research of PCDH19 Epilepsy
We support innovative studies and partner with leading scientists working on projects that aim to find therapeutic treatments and ultimately a cure.
Raise Awareness Through Fundraisers & Conferences
We create awareness through fundraisers and conferences by bringing people together to spread knowledge and inspire action.
Support Families Affected by PCDH19 Epilepsy
We support families affected by PCDH19 epilepsy with resources, community connection, financial assistance, and access to expert guidance.
Find Support
We support families impacted by PCDH19 through a variety of meaningful programs and opportunities to connect. Explore the many ways we create opportunities for virtual and in-person connection, helping families build lasting relationships and find strength in shared experience.
Resources
Our organization offers resources and support for families, educators, researchers and healthcare professionals impacted by PCDH19. Whether you’re seeking information about research, treatment, or building community, we provide guidance and tools to support, educate, and empower.
Understanding PCDH19 Epilepsy: A Guide from the PCDH19 Alliance
Learn more about the mission and impact of the PCDH19 Alliance—a volunteer-run organization dedicated to supporting families affected by PCDH19...
On Becoming an Epilepsy Advocate
Years ago, when we were just starting on our journey with PCDH19, someone suggested that I work to raise awareness...
My Perspective: Growing Up With PCDH19 Epilepsy
Many people think that having a seizure disorder like PCDH19 merely means that you occasionally have seizures. However, the reality...
The cure is out there. Help us find it.
Your donation brings us one step closer to a cure for PCDH19 epilepsy.