Patient Assistance Grant Program

Besides the emotional and physical impact that PCDH19 has, the financial strain on a family dealing with PCDH19 can be devastating in itself. If we can help a child or adult obtain necessary medical equipment, therapy, and related devices that would otherwise be out of reach, we consider it a privilege.

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Supporting children and families is our privilege.

Our Patient Assistance Grant offers funding to patients with PCDH19 Epilepsy to assist with the costs of necessary medical expenses associated with PCDH19 Epilepsy that are not covered through private insurance or other assistance programs.

View Grant Program Overview

Program Details

  • Eligibility

    This program is open to all patients who meet the program requirements. Once funds are depleted for a Patient Assistance Grant session, the program closes for the remainder of the year.

  • Covered Items

    Items that are currently covered under this program:

    • Durable medical goods (such as pulse-oximeters, seizure monitors, cooling vests, etc.)
    • Therapy programs
    • Communication devices (iPad, tablets, etc.)

    If the equipment or therapy you are interested in is not listed above, please contact us with more details on the requested item and we can review its eligibility. This program does not cover seizure dogs.

    During the years when we hold our PCDH19 Alliance Professional and Family Conference, we offer assistance grants for conference travel and lodging.

    We reserve the right to contact companies and organizations that provide requested equipment and/or services to verify price and availability. We will attempt to procure discounts or donations of equipment and/or services to allow us to meet the needs of more children and families.

  • Awards

    An applicant may apply once per grant cycle with a yearly maximum of $1,000 and a life-time award maximum of $5,000.

  • Application Requirements

    Application packets must be complete and include supporting documentation before they are placed in queue for review.

    Download Application

    Your returned application packet should include the following:

    • Completed application
    • A recent letter from the child’s physician or health care professional explaining the medical necessity of your request
    • A letter of denial from the insurance provider stating that the requested equipment and/or service was denied (if applicable)
    • Any other documentation pertaining to the nature of your request

    Send your completed application via email to julie@pcdh19info.org.

    All information is kept confidential. All information provided with an application will be reviewed and/or verified. We will not divulge application information without written consent from the applicant or their legal guardian.

    Applications that are incomplete or missing requested additional information will not be reviewed until complete.

    All applicants will receive an email stating approval or denial of their application. Denied applicants wishing to re-apply must provide additional documentation of a change of status in circumstances or that other alternatives have failed.

Questions?

If you have any questions about the grant program, please contact us.

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By awarding these grants, The PCDH19 Alliance is making no recommendation to the appropriateness or safety of a particular piece of equipment or therapy in treating PCDH19 Clustering Epilepsy. The PCDH19 Alliance and its Board of Directors is not responsible for the safety and use of awarded equipment or therapies. Applicants are strongly urged to consult with their medical professionals and therapists regarding equipment and therapies that would be most beneficial for their situation.