Share Your PCDH19 Story

To help spread awareness of PCDH19, it is important for us to share the patient story through a variety of methods. See examples of PCDH19 Epilepsy stories.

Any questions on photo and video usage may be directed to julie@pcdh19info.org.

Photo / Media Release

To submit photos or video clips for use on our website, brochures, social media, and/or other promotional materials, please complete the submission form below and upload your high-res photo files (in .jpg or .png format) or video clips (not to exceed 2MB).

Your Name
Child's Name
Please upload photos in jpg or png format. Video clips should not exceed 2MB. Please try to include your child's last name as part of the file name (i.e., smith_photo_1.jpeg)
Drop files here or
Max. file size: 16 MB.
    Examples: tell us about your family, where you live, what you like to do, what brings you joy, etc.
    What were the early days of the disease like for the patient and family? What led to a diagnosis?
    Signature(Required)