Join the PCDH19 Alliance
Becoming a member of the PCDH19 Alliance is free, easy, and open to anyone impacted by PCDH19, including parents, caregivers, individuals living with the condition, siblings, researchers, educators, and healthcare professionals. No matter your connection, your voice matters here.
Why Join the Alliance?
We are stronger together.
For Parents, Caregivers, Siblings & Families
Connect with others who understand your journey. Access support, resources, and a community that walks with you every step of the way.
For Clinicians & Researchers
Stay informed about the latest research and funding opportunities, learn from family perspectives, and join a network committed to advancing care and understanding of PCDH19.
For Advocates, Educators & Support Professionals
If you’re a teacher, DSP, therapist, or care team member working with someone affected by PCDH19, join to access valuable resources that help you better understand the condition and support the individuals and families you serve.
For Individuals Living with PCDH19
Access helpful resources and learn about opportunities to share your story and contribute to awareness efforts.
What to Expect with Your Membership
Membership is free and flexible. Join simply to stay informed, or get more involved as you’re able. No matter how you participate, you’re helping build a stronger, more connected future for everyone impacted by PCDH19.
- Regular updates about research, programs, and events
- Access to educational tools and support resources
- Opportunities to connect with the broader PCDH19 community
- Invitations to participate in events, fundraisers, and awareness efforts
Join Today!
Complete the form to join the Alliance today!
The cure is out there. Help us find it.
Your donation brings us one step closer to a cure for PCDH19 epilepsy.