Our Impact
As an organization, we’ve helped hundreds of families around the world feel less alone in their PCDH19 journey, and funded groundbreaking research focused on advancing the understanding, diagnosis, and treatment of PCDH19-related epilepsy. Through grant programs, support groups, educational resources, financial assistance, and community events, we’ve built a strong network of connection and scientific advancement. We hope you’ll join us.
Investing in Research Breakthroughs That Matter
We offer grants to researchers investigating everything from the gene’s molecular function to clinical care strategies and potential therapies.
We prioritize projects that have the potential to directly benefit individuals and families living with PCDH19. By supporting early-stage ideas, pilot studies, and collaborative efforts, we help researchers generate the data needed to pursue larger grants and long-term studies.
Our funding has helped:
Launch foundational studies on the function of the PCDH19 gene
Advance preclinical work on targeted therapies
Support natural history data collection
Facilitate patient-reported outcome studies
The cure is out there. Help us find it.
Your donation brings us one step closer to a cure for PCDH19 epilepsy.