Our Team
Our team is made up of dedicated parents, advocates, and professionals who are passionate about supporting those affected by PCDH19. Many of us have personal connections to the disorder, and we bring that lived experience to everything we do. Together, we’re committed to making a difference for every individual and family on this journey.
Board of Directors & Staff
Karin Wells-Kirkpatrick
Vice-President and Co-Founder
Christy Rollins
Treasurer
Heather Fryman
Board Member
Scientific Advisory Board
