Our Team
Our team is made up of dedicated parents, advocates, and professionals who are passionate about supporting those affected by PCDH19. Many of us have personal connections to the disorder, and we bring that lived experience to everything we do. Together, we’re committed to making a difference for every individual and family on this journey.
Board of Directors & Staff
Karin Wells-Kirkpatrick
Vice-President and Co-Founder
Christy Rollins
Treasurer
Jennifer Holland
Secretary
Heather Fryman
Board Member
Jane McGill
Board Member
Scientific Advisory Board
Dr. Joseph E. Sullivan
Pediatric Neurologist at the UCSF Benioff Children’s Hospital
Professor Jozef Gecz, PHD, FAA, FAHMS, FFSc(RCPA)
NHandMRC Senior Principal Research Fellow, Channel 7 CRF Chair for the Prevention of Childhood Disability, Adelaide Medical School, Faculty of Health and Medical Sciences
Meet Jozef
Annapurna Poduri, MD, MPH
Director of the Epilepsy Genetics Program at Boston Children’s Hospital and Associate Professor of Neurology at Harvard Medical School
Meet Annapurna