All Resources
Family & Sibling Kits
Our VIP Family & Sibling Kits are designed to support families as they navigate their own emotions, questions, and experiences....
Epilepsy & Special Needs Organizations
Explore these organizations and tools for more epilepsy resources: Seizure Tracker Epilepsy Therapy Project CURE Citizens United For Research in...
Grants For Equipment & Service Dogs
Check out these organizations if you’re looking for grants for equipment and service dogs: The Chelsea Hutchinson Foundation The Danny...
Preparing for Another School Year with Epilepsy: 5 Tips to Make This Your Best Year Yet
In the next few weeks, many of our kids will be heading off to school. This can be a stressful...
Dear Parent: It’s OK to be where you are.
When my daughter received her diagnosis of PCDH19, I fell apart. I had days when I couldn’t get out of...
On Becoming an Epilepsy Advocate
Years ago, when we were just starting on our journey with PCDH19, someone suggested that I work to raise awareness...
Another Year in Holland: Life as a Parent of a Child with PCDH19
The decorations are put away, the ball has dropped, kids are heading back to school and parents around the world...
PCDH19 Moms
Moms of kids with PCDH19 are often fierce advocates, medical managers and public educators. First and foremost though, we are...
A hike from the heart – PCDH19 Life
This summer, my husband and I took our kids on a road trip through Utah and Colorado. We drove through...
Surviving the Hard Days
This week researchers from University California San Francisco and Boston Children’s Hospital released a study based on data from the...
The Car Seat-to-Booster Seat Struggle
I am hoping to help – especially those of you with toddlers or younger children – or those of you...
My Daughter With Epilepsy: Reflections From a Father
Sloan Olivia Holland. The name of the girl I knew would be trouble as soon as the doctor told my...
The cure is out there. Help us find it.
Your donation brings us one step closer to a cure for PCDH19 epilepsy.