All Resources
Le Shepherd, LPC-Supervisor: Grief & Trauma Among Parents of Kids with PCDH19 Epilepsy
Learn more about grief and trauma among parents of children with PCDH19 epilepsy, presented by Le Shepherd, LPC-Supervisor, at the...
Keena Melville, PhD: A Sensory-Based Approach to Reading Comprehension for Neurodivergent Folks
Learn more about the sensory-based approach to reading comprehension for neurodivergent individuals, presented by Keena Melville, PhD, at the PCDH19...
Stephanie Gandomi, MS, MBA, LCGC: Integrative Health Genomics: A Critical Shift Toward Whole-Person Healthcare
Learn more about the role of genetics in PCDH19-related disorders in this session with Stephanie Gandomi, MS, MBA, LCG. She...
Kelly Weatherwax, MS, SLP-CCC: Neurodiversity Affirming Practices
Learn more about neurodiversity-affirming practices in speech therapy with Kelly Weatherwax, MS, CCC-SLP, from The Helix School in Marin. In...
Lacy Smith, MS, CGC & Nilika Singhal, MD: PCDH19 Registry: Looking Back on Ten Years
Learn more about the PCDH19 Patient Registry in this session led by Dr. Nilika Singhal (UCSF Benioff Children’s Hospital) and...
Dr. Francesco Dellepiane: In vivo evaluation of structural and connectivity changes in patients with PCDH19 via novel diffusion MRI models
Learn more about the cutting-edge brain imaging research presented by Dr. Francesco Dellepiane, a pediatric neuroradiologist at Bambino Gesù Hospital...
Prof. Paul Thomas PhD: Investigating Molecular Mechanisms Underlying PCDH19 Clustering Epilepsy
Learn more about Dr. Charles Nelson’s research on how early life adversity affects brain development, behavior, and cognition. His work...
Julie Ziobro, MD / PhD: Examining Inhibitory Interneurons in PCDH19-Clustering Epilepsy
Learn more about cutting-edge research from Dr. Julie Zdeb-Rutter at the University of Michigan, exploring how inhibitory interneurons and disrupted...
Hisashi Umemori, MD, PhD: Mismatch in PCDH19-Related Disorder
Learn more about the groundbreaking research from Dr. Isamu Saito and his team at Boston Children’s Hospital and Harvard Medical...
PCDH19 Alliance 2024 Conference Introduction & Kickoff: Dr. Joseph Sullivan, and Julie Walters
Dr. Joseph Sullivan MD, and Julie Walters, President & Co-founder PCDH19 Alliance...
PCDH19 Epilepsy Town Hall 2021
Learn more about the latest research and clinical insights into PCDH19-related epilepsy — from genetic discoveries and animal models to...
Behavior in Epilepsy, Getting a Proper Diagnosis
Learn more about an integrated care model for children with epilepsy, including those with PCDH19, presented at the 2018 PCDH19...
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