All Resources
The Car Seat-to-Booster Seat Struggle
I am hoping to help – especially those of you with toddlers or younger children – or those of you...
New Treatments – How Much Longer?
After months – maybe even years – of feeling like a hamster on its exercise wheel chasing a solution to...
Why I Fundraise For The PCDH19 Alliance
I first met Julie Walters during a 10 day stay in the PICU in 2009, when a nurse told me...
Letter of Medical Necessity: What is it? Why do I need it? How do I write it?
First, a little background before we begin; I am a single mother of three. My oldest daughter is 19-years-old and...
The cure is out there. Help us find it.
Your donation brings us one step closer to a cure for PCDH19 epilepsy.