Resources - Living with PCDH19 / Personal Stories
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Pegan’s Story
Pegan Wade is my beautiful 6 year old daughter. She was born on 8.7.08. She began having seizures when she...

Olivia’s Story
Olivia Rose was born in October 2006. A sweet, precious daughter who captured our hearts. The little girl we dreamed...

Maegan’s Story
This was the start of my being sick all the time with recurrent pneumonia, UTI’s, cold sores, GI issues, and...

Louie’s Story
Louie was born on October 9, 2018. He was our miracle baby and made our family complete. He forever changed...

Lexi’s Story
We referred to Lexi as our mystery girl for 12 years, before she was diagnosed with PCDH19 and Cornelia de...

Kayla’s Story
Kayla and her twin brother were born in June 2010, joining their sister who is 18 months older than the...

Kate’s Story
On September 14, 2010 Kate was born along with her twin brother weighing in at 4lbs, 11oz. She was very...

Jane’s Story
Jane was born on September 25th 2011 after an extremely easy pregnancy with no complications. She met many milestones early;...

Isabella’s Story
Isabella was born in November 2011. As a baby she was happy and active with quite a personality. She’s a...

Isabel’s Story
The first fifteen months of Isabel’s life were amazing. She had a wonderful personality, was a fantastic sleeper and could...

Giorgia’s Story
Giorgia was born January 19, 2002, the second daughter after our first son. A beautiful girl I’ve longed for! Giorgia,...

Freya’s Story
Freya was born June 2010, she was happy and healthy and always such a good girl. As she grew she...
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