All Resources
Filipa’s Story
Ana Filipa was born December 15, 2005, after a normal pregnancy and a very normal delivery. The first months of...
Faith’s Story
On June 3rd 2010, Faith was born along with her twin brother. I was 36 weeks along and they were...
Esmé’s Story
When Esmé was born, it was clear pretty quickly that something wasn’t quite “right.” She wasn’t breathing well, she was...
Emily’s Story
Emily had her first seizure cluster on August 17th, 2016 at just 15 & 1/2 months old. She spent 6...
Ellie’s Story
My daughter Ellie started seizuring at 9 months of age and we were in hospital for two weeks, with Ellie...
Ella’s Story
Ella was born on the 3rd of April 2005. She was my first child, a happy healthy beautiful girl with...
Camille’s Story
Camille was born October 22, 2010 , from the first day , she had great difficulty falling asleep , she...
Beatrice’s Story
Beatrice: derived from the Latin, meaning “voyager or traveler through life”, and again, Beatrice from the Latin to the popular...
Annabelle’s Story
Our Sweet Annabelle was born 2.5 months premature on March 10, 2008. After 62 days in the NICU, Annabelle was...
Ann’s Story
Monday, June 13, 2011 was going to be like any other day, Ann and I were going to go to...
Amber’s Story
Amber was born on May 28, 1999. Her birth was pretty much normal, but soon after they brought her to...
Amanda’s Story
Happily pregnant, we were adding a baby girl to our family; our toddler son embraced his sister as well as...
The cure is out there. Help us find it.
Your donation brings us one step closer to a cure for PCDH19 epilepsy.