All Resources
Family & Sibling Kits
Our VIP Family & Sibling Kits are designed to support families as they navigate their own emotions, questions, and experiences....
Epilepsy & Special Needs Organizations
Explore these organizations and tools for more epilepsy resources: Seizure Tracker Epilepsy Therapy Project CURE Citizens United For Research in...
Grants For Equipment & Service Dogs
Check out these organizations if you’re looking for grants for equipment and service dogs: The Chelsea Hutchinson Foundation The Danny...
New Treatments – How Much Longer?
After months – maybe even years – of feeling like a hamster on its exercise wheel chasing a solution to...
Letter of Medical Necessity: What is it? Why do I need it? How do I write it?
First, a little background before we begin; I am a single mother of three. My oldest daughter is 19-years-old and...
PCDH19 Epilepsy at School: Resources
Check out these resources for equipping students with PCDH19 Epilepsy to thrive at school....
Meet the Student: Classroom Introduction for Children with PCDH19 Epilepsy
Learn more about how to best support a student with PCDH19 Epilepsy in the classroom. This customizable introduction letter helps...
State-by-State PCDH19 Resources
Explore resources related to PCDH19 Epilepsy in your state....
Insurance & Waiver Program Guides
Our state-by-state insurance guide can serve as a starting point for helping you understand and navigate available insurance and waiver programs in your area....
Understanding PCDH19 Epilepsy: A Guide from the PCDH19 Alliance
Learn more about the mission and impact of the PCDH19 Alliance—a volunteer-run organization dedicated to supporting families affected by PCDH19...
The cure is out there. Help us find it.
Your donation brings us one step closer to a cure for PCDH19 epilepsy.