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  • About Us
    • About the Alliance
    • Our Team
    • Impact
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  • Shop
  • Join
  • Donate
  • About PCDH19 Epilepsy
  • Research
  • Resources
    • For Newly Diagnosed
    • For Parents
    • For Siblings
    • For Self-Advocates
    • For Researchers
    • For Clinicians
    • All Resources
  • Find Support
  • Get Involved

Resources

Epilepsy & Special Needs Organizations

July 21, 2025
Resources & Tools

Explore these organizations and tools for more epilepsy resources:

  • Seizure Tracker
  • Epilepsy Therapy Project
  • CURE Citizens United For Research in Epilepsy
  • Dravet Syndrome Foundation

Special Needs Resources

  • Federation for Children with Special Needs
  • Easter Seals
  • Adaptive Mall

Related Resources

State-by-State PCDH19 Resources

Explore resources related to PCDH19 Epilepsy in your state....

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PCDH19 Epilepsy at School: Resources

Check out these resources for equipping students with PCDH19 Epilepsy to thrive at school....

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Insurance & Waiver Program Guides

Our state-by-state insurance guide can serve as a starting point for helping you understand and navigate available insurance and waiver programs in your area....

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The PCDH19 Alliance is a registered non-profit by the Internal Revenue Service under Section 501 (c)(3). All the funds we raise go directly to funding research, supporting families, raising awareness, and finding a cure.

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Novato, CA 94945 julie@pcdh19info.org

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