Our VIP Family & Sibling Kits are designed to support families as they navigate their own emotions, questions, and experiences. Each kit includes age-appropriate tools and activities to help siblings feel seen, valued, and better equipped to understand what their family is going through. It’s one small way we honor the important role they play and remind them they are Very Important People, too.
Kits were developed by the VIP Sibling Collaboration Team for rare epilepsy families based on research, expertise, and community input. Thanks to UCB, we are able to provide these resources absolutely free to families in our community.
Only registered members of the PCDH19 Facebook Support Group who reside in the U.S. may register to receive a VIP Sibling Kit. If you are unsure if you are a member or would like to become one, you can email julie@pcdh19info.org.
