PCDH19 Resources
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Kayla’s Story
Kayla and her twin brother were born in June 2010, joining their sister who is 18 months older than the...

Kate’s Story
On September 14, 2010 Kate was born along with her twin brother weighing in at 4lbs, 11oz. She was very...

Jane’s Story
Jane was born on September 25th 2011 after an extremely easy pregnancy with no complications. She met many milestones early;...

Isabella’s Story
Isabella was born in November 2011. As a baby she was happy and active with quite a personality. She’s a...

Isabel’s Story
The first fifteen months of Isabel’s life were amazing. She had a wonderful personality, was a fantastic sleeper and could...

Giorgia’s Story
Giorgia was born January 19, 2002, the second daughter after our first son. A beautiful girl I’ve longed for! Giorgia,...

Freya’s Story
Freya was born June 2010, she was happy and healthy and always such a good girl. As she grew she...

Filipa’s Story
Ana Filipa was born December 15, 2005, after a normal pregnancy and a very normal delivery. The first months of...

Faith’s Story
On June 3rd 2010, Faith was born along with her twin brother. I was 36 weeks along and they were...

Esmé’s Story
When Esmé was born, it was clear pretty quickly that something wasn’t quite “right.” She wasn’t breathing well, she was...

Emily’s Story
Emily had her first seizure cluster on August 17th, 2016 at just 15 & 1/2 months old. She spent 6...

Ellie’s Story
My daughter Ellie started seizuring at 9 months of age and we were in hospital for two weeks, with Ellie...
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