All Resources
Ella’s Story
Ella was born on the 3rd of April 2005. She was my first child, a happy healthy beautiful girl with...
Camille’s Story
Camille was born October 22, 2010 , from the first day , she had great difficulty falling asleep , she...
Beatrice’s Story
Beatrice: derived from the Latin, meaning “voyager or traveler through life”, and again, Beatrice from the Latin to the popular...
Annabelle’s Story
Our Sweet Annabelle was born 2.5 months premature on March 10, 2008. After 62 days in the NICU, Annabelle was...
Ann’s Story
Monday, June 13, 2011 was going to be like any other day, Ann and I were going to go to...
Amber’s Story
Amber was born on May 28, 1999. Her birth was pretty much normal, but soon after they brought her to...
Amanda’s Story
Happily pregnant, we were adding a baby girl to our family; our toddler son embraced his sister as well as...
PCDH19 Epilepsy at School: Resources
Check out these resources for equipping students with PCDH19 Epilepsy to thrive at school....
Meet the Student: Classroom Introduction for Children with PCDH19 Epilepsy
Learn more about how to best support a student with PCDH19 Epilepsy in the classroom. This customizable introduction letter helps...
Supporting Students with PCDH19 Epilepsy: A Guide for Schools and Educators
Learn more about how PCDH19 Epilepsy can affect students in the classroom and how schools can provide individualized support. This...
PCDH19 Genetics 3: X-Chromosome Inactivation & Mosaicism
Learn more about the X-chromosome inactivation and Mosaicism related to PCDH19. This is the third in an ongoing series of...
PCDH19 Genetics 2: Inheritance
Learn more about the inheritance of genes related to PCDH19. This is the second in an ongoing series of instructional...
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