Learn more about the PCDH19 Registry, its purpose, findings, and future goals, as presented during the 2018 PCDH19 Epilepsy Professional and Family Symposium. This session highlights how the registry is advancing research through clinical data collection, participant enrollment, and collaboration with families — providing insight into seizure onset, behavior challenges, developmental concerns, and treatment response.
Lacey Smith, MS, CGC
Boston Children’s Hospital
Boston, Massachusetts
Presented by the PCDH19 Alliance and the Department of Neurology UCSF San Francisco School of Medicine.
